The WTC Environmental Health Center (EHC) Survivor Data Center (SDC) collects, manages, and analyzes data for the WTC Health Program. The SDC is responsible for preparing and disseminating reports, presentations, and research publications on behalf of the WTC EHC. The SDC is one of several data centers that exist within the WTC Health Program, but is the only data center dedicated to Survivors.
Contact Information
Survivor Data Center (SDC)
Michelle Hyde, Director
50 Water St, 3rd floor
New York, NY 10041
212-788-0949
Member Demographics
Member enrolled in the WTC EHC share similar demographic characteristics with New York City. The population, residing in all five boroughs, is racially and ethnically diverse and 50% female. Below, some tables presenting characteristics of the Survivor cohort as of December 31, 2023.
| Race | Hispanic | Non-Hispanic | Unknown | Total |
|---|---|---|---|---|
| Multiracial | 15 | 13 | 0 | 28 |
| Native Hawaiian/Pacific Islander | 14 | 19 | 0 | 33 |
| American Indian or Alaskan Native | 46 | 30 | 0 | 76 |
| Asian | 17 | 1,946 | 58 | 2,021 |
| Black or African American | 153 | 2,592 | 23 | 2,768 |
| White | 799 | 5,454 | 39 | 6,292 |
| Declined | 284 | 174 | 3 | 461 |
| Unknown | 23 | 19 | 1,576 | 1,618 |
| Other | 1,290 | 463 | 24 | 1,777 |
| Educational Status Reported at First Visit | # | % |
|---|---|---|
| More than high school | 8,713 | 72% |
| High school (12th grade) | 2,450 | 20% |
| < High school graduate | 986 | 8% |
| No schooling | 19 | <1% |
| Unknown | 6 | <1% |
| Most Common Cancers in Survivor Population (In descending order) |
|---|
| Breast |
| Carcinoma of the Skin |
| Prostate |
| Lung |
| Thyroid |
| Lymphoma |
| Colon and rectum |
| Melanoma of the skin |
| Head and neck sites |
| Kidney |
| Urinary Bladder |
Make a Data Request
Data are available to researchers to study the impact of the World Trade Center disaster on community members. Research protocols must be approved by the requestor’s IRB and the WTC EHC Research Oversight Committee. Please review the requirements carefully before making a request.
Select Research Publications
WTC EHC Data Scientists have explored health conditions resulting from WTC exposure, including cancers, respiratory diseases, mental health condition, cognitive functioning, and digestive disorders.
Please click on the links below to review recent publications.
- Clinical and Economic Burden of Severe Asthma among US patients Treated with Biologic Therapies
- Cognitive Function among World Trade Center-Exposed Community Members with Mental Health Symptoms
- Global DNA Methylation Profiles in Peripheral Blood of WTC-Exposed Community Members with Breast Cancer
- Lung Cancer Characteristics in the World Trade Center Environmental Health Center
- Characteristics of Cancers in Community Members Exposed to the World Trade Center Disaster at a Young Age